{"id":11786,"date":"2020-07-28T16:00:00","date_gmt":"2020-07-28T20:00:00","guid":{"rendered":"https:\/\/www.shortform.com\/blog\/?p=11786"},"modified":"2022-04-01T15:59:37","modified_gmt":"2022-04-01T19:59:37","slug":"henrietta-lacks-ethics-issues","status":"publish","type":"post","link":"https:\/\/www.shortform.com\/blog\/henrietta-lacks-ethics-issues\/","title":{"rendered":"Henrietta Lacks: Ethics Questions Raised by Use of HeLa"},"content":{"rendered":"\n<p>What ethics issues were raised by <em>The Immortal Life of Henrietta Lacks<\/em>? Did researchers have Henrietta Lacks&#8217; consent to use her tissue? How have standards changed?<\/p>\n\n\n\n<p>In <em>The Immortal Life of Henrietta Lacks<\/em>, ethics are an important discussion. Henrietta Lacks&#8217; informed consent was not considered in using her tissue for HeLa.<\/p>\n\n\n\n<p>Read about consent in <em>The Immortal Life of Henrietta Lacks<\/em>, ethics questions raised, and current informed consent requirements.<\/p>\n\n\n\n<!--more-->\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Excising Cells From Henrietta Lacks: Ethics Violation?<\/strong><\/h3>\n\n\n\n<p><strong>Henrietta, unbeknownst to her, became one of TeLinde\u2019s and the Geys\u2019 subjects<\/strong>. In making a research subject of Henrietta Lacks, ethics were questionable. When she returned to the hospital after receiving her diagnosis\u2014rather than tell Day or her family that she\u2019d been diagnosed with a malignant tumor, she simply told them the doctors needed to evaluate her and give her some medicine\u2014she signed a consent form to be operated on, was subjected to a battery of tests, and eventually treated with radium, the <a href=\"https:\/\/www.shortform.com\/blog\/gold-standard-vs-fiat-currency\/\">gold standard<\/a> for cancer treatment at the time. (It was later discovered to cause cancer itself.) <strong>Before her surgeon applied the radium to her cervix, however, he took a small sample of both healthy tissue and cancerous tissue and sent it off to the Geys\u2019 lab<\/strong>.<br><\/p>\n\n\n\n<p>In <em>The Immortal Life of Henrietta Lacks<\/em>, ethics questions continue after her death. After an autopsy, <strong>during which more samples were taken from Henrietta\u2019s body without the family of Henrietta Lacks&#8217; consent<\/strong>, Henrietta was buried in Clover in an unmarked grave.&nbsp;<\/p>\n\n\n\n<p>Day later told the story of the day he went to Hopkins and signed off on Henrietta\u2019s autopsy. <strong>He said that no one told him anything about keeping her cells alive<\/strong>; the doctors only said that, by performing the autopsy, they might be able to save Day\u2019s children and grandchildren from cancer.&nbsp;<br><\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Disregarding the Family of Henrietta Lacks\u2019 Informed Consent&nbsp;<\/strong><\/h3>\n\n\n\n<p>The Lacks family themselves had grown up in the shadow of Hopkins, hearing about \u201cnight doctors\u201d who snatched African-Americans off the street for gruesome experiments. Johns Hopkins raised, even before taking cells from Henrietta Lacks, ethics issues. <strong>The cultivation of her cells without Henrietta Lacks&#8217; consent or the family of Henrietta Lacks&#8217; consent\u2014and the economic difficulties of her kin\u2014became a testament to the persistent power disparities between Blacks and Whites in the U.S.<\/strong><br><\/p>\n\n\n\n<p>In <em>The Immortal Life of Henrietta Lacks<\/em>, ethics violations are seen in later inteA Hopkins geneticist named <a href=\"https:\/\/www.shortform.com\/blog\/victor-mckusick-susan-hsu-hela\/\">Victor McKusick<\/a>, who\u2019d been one of the authors to first publish Henrietta\u2019s real name, had volunteered to take the lead on addressing the contamination issue that was then upending cell science. His idea was that, if he could draw blood from Henrietta\u2019s descendants, he could isolate certain gene markers that would allow him to determine which cells were HeLa and which weren\u2019t. <strong>And since the Lackses were Hopkins patients, he had easy access to their medical records and contact information<\/strong>. They pursued testing without the family of Henrietta Lacks&#8217; informed consent.<br><\/p>\n\n\n\n<p>McKusick deputized a postdoctoral fellow named Susan Hsu to collect the blood samples from the Lackses. <strong>Neither Hsu nor McKusick got the family of Henrietta Lacks&#8217; informed consent<\/strong>. At the time, NIH had mandated that all research it funded involving human subjects required informed consent\u2014McKusick\u2019s research was NIH funded\u2014but the informed-consent requirement had yet to be made law. In fact, only months after Hsu first called Day, a proposed federal law mandating informed consent would be made available for public comment.&nbsp;If these requirements had been present when getting blood from the <a href=\"https:\/\/www.shortform.com\/blog\/henrietta-lacks-family\/\">family of Henrietta Lacks<\/a>, ethics violations would have been an issue.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>What ethics issues were raised by The Immortal Life of Henrietta Lacks? Did researchers have Henrietta Lacks&#8217; consent to use her tissue? How have standards changed? In The Immortal Life of Henrietta Lacks, ethics are an important discussion. Henrietta Lacks&#8217; informed consent was not considered in using her tissue for HeLa. Read about consent in The Immortal Life of Henrietta Lacks, ethics questions raised, and current informed consent requirements.<\/p>\n","protected":false},"author":6,"featured_media":11798,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[20,16],"tags":[111],"class_list":["post-11786","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ethics","category-health","tag-the-immortal-life-of-henrietta-lacks","","tg-column-two"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v24.3 (Yoast SEO v24.3) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Henrietta Lacks: Ethics Questions Raised by Use of HeLa - Shortform Books<\/title>\n<meta name=\"description\" content=\"In taking tissue from Henrietta Lacks, ethics questions were raised. Henrietta Lacks&#039; informed consent was not gained before growing HeLa cells. Learn more.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.shortform.com\/blog\/henrietta-lacks-ethics-issues\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Henrietta Lacks: Ethics Questions Raised by Use of HeLa\" \/>\n<meta property=\"og:description\" content=\"In taking tissue from Henrietta Lacks, ethics questions were raised. Henrietta Lacks&#039; informed consent was not gained before growing HeLa cells. Learn more.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.shortform.com\/blog\/henrietta-lacks-ethics-issues\/\" \/>\n<meta property=\"og:site_name\" content=\"Shortform Books\" \/>\n<meta property=\"article:published_time\" content=\"2020-07-28T20:00:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2022-04-01T19:59:37+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/s3.amazonaws.com\/wordpress.shortform.com\/blog\/wp-content\/uploads\/2020\/07\/the-immortal-life-of-henrietta-lacks-consent-scaled.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"2560\" \/>\n\t<meta property=\"og:image:height\" content=\"1709\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Rina Shah\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Rina Shah\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.shortform.com\/blog\/henrietta-lacks-ethics-issues\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.shortform.com\/blog\/henrietta-lacks-ethics-issues\/\"},\"author\":{\"name\":\"Rina Shah\",\"@id\":\"https:\/\/www.shortform.com\/blog\/#\/schema\/person\/d07435826f13a8f422d5d333dceac287\"},\"headline\":\"Henrietta Lacks: Ethics Questions Raised by Use of HeLa\",\"datePublished\":\"2020-07-28T20:00:00+00:00\",\"dateModified\":\"2022-04-01T19:59:37+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.shortform.com\/blog\/henrietta-lacks-ethics-issues\/\"},\"wordCount\":620,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\/\/www.shortform.com\/blog\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.shortform.com\/blog\/henrietta-lacks-ethics-issues\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.shortform.com\/blog\/wp-content\/uploads\/2020\/07\/the-immortal-life-of-henrietta-lacks-consent-scaled.jpg\",\"keywords\":[\"The Immortal Life of Henrietta Lacks\"],\"articleSection\":[\"Ethics\",\"Health\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/www.shortform.com\/blog\/henrietta-lacks-ethics-issues\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.shortform.com\/blog\/henrietta-lacks-ethics-issues\/\",\"url\":\"https:\/\/www.shortform.com\/blog\/henrietta-lacks-ethics-issues\/\",\"name\":\"Henrietta Lacks: Ethics Questions Raised by Use of HeLa - Shortform Books\",\"isPartOf\":{\"@id\":\"https:\/\/www.shortform.com\/blog\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.shortform.com\/blog\/henrietta-lacks-ethics-issues\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.shortform.com\/blog\/henrietta-lacks-ethics-issues\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.shortform.com\/blog\/wp-content\/uploads\/2020\/07\/the-immortal-life-of-henrietta-lacks-consent-scaled.jpg\",\"datePublished\":\"2020-07-28T20:00:00+00:00\",\"dateModified\":\"2022-04-01T19:59:37+00:00\",\"description\":\"In taking tissue from Henrietta Lacks, ethics questions were raised. 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